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KMID : 1011120220150020001
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Bioethics Policy Studies
2022 Volume.15 No. 2 p.1 ~ p.26
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Ethical Issues of Informed Consent from the Individuals Disabled Due to Hearing Loss or Visual Impairment in Human Subject Research
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Kwon Ivo
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Abstract
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It is difficult to get the informed consent from the individuals who are disabled due to hearing loss or visual impairment so as to let them to participate in human subject researches. However, the researchers should try to their best to respect the autonomy of the potential human subjects and employ appropriate communicating tools considering their unique needs in the communication. For the purpose, the use of sign language or braille system, recording of the consent process, and the participation of the impartial witness could be suggested. We should not exclude the disabled, but mentally competent person from the enrollment of human subject researches, which might be beneficial to them only for the reason that they have the disability. The development of IT technology will help the researchers to communicate with the disabled individuals who are to participate in the research.
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KEYWORD
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human subject research, the disabled, informed consent, competency, consent process
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